Welcome to the Patient Registry for Blind Subjects with Sleep-Related Problems
The Patient Registry for Blind Subjects with Sleep-Related Problems will enable research on circadian rhythm disorders and the study of potential therapeutics in adult and pediatric populations. Non-24-Hour Sleep-Wake Disorder (Non-24) is experienced primarily by people who are totally blind and results in abnormal night sleep patterns and chronic daytime sleepiness. Patients enrolled in the registry will have the option of receiving notification of upcoming research projects for which they may be eligible.
Why is it important to participate?
Joining the Patient Registry for Blind Subjects with Sleep-Related Problems will help researchers better understand sleep related problems in people who are blind, including investigation of potential therapeutics. The registry will help researchers identify and recruit patients who are eligible for participation in future clinical studies, and to provide a forum for raising awareness about Non-24. Participants will have the chance to take part in a survey. The survey consists of questions regarding the degree of vision impairment and sleep problems that individuals may be experiencing.